We started in 1991 and we were the first Paediatric Palliative Care unit in Spain.
Since 2009, we have cared for more than 587 patients and their families.
Continuing care wherever patients are
We offer hospital-level outpatient and hospital-at-home care. Care can be focused according to the needs of the child and his/her family.
There is a 24-hour telephone service to deal with emergencies and questions at any time of day or night, every day of the week, including holidays. In some cases a doctor and/or nurse may be able to come in-person to where the child and his or her family are.
We support families
Another function of the unit is to train families so that they can carry out the necessary care at home. This is about giving carers the tools they need to take the proper action and deal effectively with different situations, always with the support of the Palliative Care Unit's professional team. This also involves training carers so that they can control the symptoms of the disease and help them to address the family's situation, both practically and emotionally. We help them to assess when and how to give information, such as talking to siblings if there are any, as well as to the patient.
We offer emotional support and follow-up during mourning.
Our working method is based on the interrelationship and coordination with other hospital departments. Together, all the professionals involved form one team. We implement a treatment plan with all the professionals of the units involved in a patient's care. The plan is agreed on by the referring team and the family. It contains the objectives to be met, the family's strengths, problems that may arise and how to solve them.
We have also established links with primary care and other teams, such as PADES (Home Care Programme and Support Teams). The interdisciplinary team can establish channels of communication with other systems besides healthcare (social services, educational system, etc.).
Admission to the Palliative Care Unit does not necessarily entail a change in the patient's treatment or testing. In other words, patients will continue going to see their specialist at the hospital as required. Clinical or lab tests may be able to be done by the team at a patient's home, thus avoiding disruptions to the family's normal routine and the inconvenience of having to travel to the hospital.