We understand that you can feel confused if your doctor has given you the chance of the palliative care team start tracking your child.
However, note that receiving palliative care or not does not change the situation of the disease, or the objectives of the medical team that has treated your child until now. Only the evolution of the disease and the desires of your child and your family can modify the objectives.
Palliative care is total active care of body, mind and spirit of the child, also including family support. Start when diagnosed with a life threatening illness and continue regardless of whether or not the child receives treatment of the disease itself.
But why just now?
It is very important to know why he has chosen this particular moment of the disease, so do not hesitate to ask if you have not been given this information.
The causes may be different, such as:
- Perhaps the symptoms that your child is being difficult to manage the disease progression and complications in the short-medium term are expected.
- They could focus home care and spare you having to go to hospital as often.
The reality is that the palliative care team know the case of your child almost from the diagnosis. But his work until now has focused on advice and help with disease management specialist you already know.
The fact that you now know them, is that the overall situation is more complex. The benefits of our intervention are greater than so far and can better respond to the new needs that have arisen in the course of the disease.
How could palliative care help my child?
Serious illnesses often require aggressive treatments that can cause pain and other symptoms. Discomfort and suffering may occur, but we can anticipate and try to control them properly with palliative care to minimize its impact.
That's why it is essential to combine the healing, specific treatments for the disease, with palliative treatments, faced to deal with the consequences of this.
What does it mean receiving palliative care?
Receiving palliative care does not equate to withdraw or limit the treatments, and the measures applied may be transient and even an improvement of the disease occur.
If it is not possible to cure your child's disease, the goal may be to stabilize or slow its evolution and ensure that their daily lives are normal and with the best quality of life possible.
Palliative care at home
It is possible that the trips to the hospital since your child is sick are constant. The hours in waiting rooms and visits to several specialists become routine for the family. Even revenue plan are common.
As the disease progresses and you need to increase your child requires care, medical support can mean spending more time in the hospital.
Since the Unit tried to focus palliative care home care to reduce the need to come to the hospital as often or even reduce the number of visits to specialists.
Our experience has taught us that when problems can be solved at home the stress level of the whole family decreases.
Severely ill children, when they are in their last days of life, they often want to be at home, among his toys in his room, accompanied by brothers and the rest of the family. Our team makes every effort to make this wish come true and accompanying parents throughout the process.
Parents also have more availability to perform normal activities of running a home, work or care for other children. The attention that your children will receive is not different than in the hospital.
Depending on the situation of your son, our home team can apply the same treatment that would be provided in the hospital. What changes is that we pursue comfort the child above the clinical outcome, since the objective can no longer be cured, but that their quality of life as good as possible.
It is normal to feel fear and uncertainty when you think about caring for a child at home until the end. Our team will help you by telling you what can happen and teaching you the medication management and care that your child will need. In addition you will have a phone 24 hours a day to call for any question.