New technology allows the SJD Barcelona Children’s Hospital to put forward tools for sharing information between families and healthcare professionals. This exchange of information is a basic step in expanding knowledge of pediatric disease and improving research thereof.
Share4Rare: a social network for rare diseases
This digital platform connects patients, care providers and rare disease researchers all over the world. Their main goal is to offer a safe, virtual meeting point that empowers families, and gather data needed to improve research into rare diseases.
Share4Rare is open for registered users to interact with one another.
