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Palliative Care

Alleviating suffering and ensuring the quality of life of children suffering from serious, life-threatening diseases.

At the SJD Barcelona Children's Hospital's Palliative Care and Complex Chronic Patient Service we provide comprehensive, continuous care to children suffering from serious diseases, who may not reach adulthood, as well as to their families. We see this combination of children and their families as something which is indivisible if we are to provide comprehensive care. 

In these situations, the needs are usually multiple and complex. The team aims to provide physical, social, emotional and spiritual support. Although one of the functions of our department is to help control the symptoms which may arise in complex illnesses, we never lose sight of our principal aim of guaranteeing the well-being of children and their families

The Palliative Care and Complex Chronic Patient Service is made up of two paediatricians, four nurses, a social worker, a chaplain and a psychologist, all specialised in the setting of pediatric palliative care. All of these professionals are needed to offer the desired comprehensive care, since, when a serious disease is diagnosed, all aspects of the children's and their families lives are affected. Fully aware of the complexity of the work, as an institution, we take the utmost care of our professionals so that they can provide optimal care.

La Casa de Sofia, the first care center for rare diseases and complex chronicity for children

The palliative care and complex chronic patient team at SJD Barcelona Children's Hospital lead the start-up of this center whose objective is to prevent or delay the admission of children with advanced disease or complex chronicity. The center, with a capacity for 15 patients and their families, is part of a new model promoted by the team that puts the needs of the patient and the training of families at the center.