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Health ICT (Information and Communication Technologies)

Rare Commons 

Problem and solution

Rare Commons is a digital research project at SJD Barcelona Children's Hospital focused on the biomedical study of rare diseases that affect children.

The initiative is based on an online platform that allows user interaction thanks to a dynamic of information, training and participation that simulates a virtual social network environment. Users are grouped by private communities of families and physicians that work together to improve scientific knowledge of the disease and describe its natural history. The communities are also a place of support among families and physicians.

Current status

  • 8 outcomes discovered. 
  • HINNOVAR/Novartis Award (2012).
  • Honda Award (2013).

Source

Internal innovation (Dr. Merche Serrano Gimaré, Genetics and Molecular Medicine, and Begoña Nafría, hospital researcher).

Rare Commons (in Spanish)

Funny Friends

Problem and solution

Patients with cystic fibrosis need to perform respiratory rehabilitation every day, with very basic inhalation and exhalation exercises. These exercises are very repetitive and boring for children, which results in low adherence to treatment. It is also a source of conflict at home between parents and children, because the child does not want to perform the exercises.

Funny Friends is an interactive game aimed at children who suffer from a respiratory disease such as cystic fibrosis that requires respiratory physiotherapy. Its main objective is to allow children to perform rehabilitation exercises at home, outside of the hospital environment, in a fun way, reducing their rejection to treatment and making it more pleasant. 

In addition, Funny Friends allows the work done by children to be remotely planned, monitored and checked by physicians and physiotherapists, through the use of wireless smart respiration sensors and a web platform.

Current status

  • Worldwide patent.
  • Clinical trial (2015 - 2016).
  • Licenced to VecMedical.

Source

Internal innovation (physiotherapist Enrique del Campo and Dr. Maria Cols) developed in collaboration with Òmada Interactiva and VecMedical with support from the Vodafone Foundation and Novartis.

Funny Friends (in Spanish)

Cognitive social robot pet in healthcare

Problem and solution

Since 2011, Universitat Politècnica de Catalunya (UPC), La Salle Campus Barcelona, Universitat Autònoma de Barcelona (UAB) and SJD Barcelona Children's Hospital have been working to develop interactive robots: (i) to reduce pain and anxiety in children who are hospitalised or undergo some type of hospital clinical procedure and (ii) to increase interactions in the child/institution/parent network in stressful situations. 

This multidisciplinary project has allowed studies to be conducted from different approaches: technological, psychological, clinical and social.

One of the main uses for the robot is in unconventional therapies such as current therapies with animals. It offers many advantages over these. This type of intervention plays an important supplementary role for patients with chronic ailments or diseases inside and outside of the hospital. 

SJD Barcelona Children's Hospital is making use of robots in hospitalisation and in the Rainbow preoperative room, and is starting a study in emergency-care waiting rooms. 

Work is under way on a new version capable of collecting data on the state of the patient that will be useful to clinical staff in the diagnosis and follow-up of their patients' state of health.

Current status

Source

External innovation (collaborative project between UPC, La Salle, UAB and SJD Barcelona Children's Hospital). 

Training Karyotypes

Problem and solution

In 2014, a team of professionals from SJD Barcelona Children's Hospital created Training Karyotypes, the first mobile app in the world that allows karyotypes to be made using human chromosomes.  

Current status

  • Marketed since 2014.

Source

Internal innovation (Dr. Isabel Plensa Nebot, Dr. María del Mar Pérez Iribarne, Dr. Esther Gean Molins, from the Cytogenetics Laboratory, and Dr. Gemma Gelabert Colomé, Head of Clinical Documentation at the Hospital).

Training Karyotypes

5 minutes

Problem and solution

The 5-minute programme is a dynamic, interactive, brief (5 minutes) weekly virtual training service that supplements traditional continuing education.

The project aims to create a space for exchange of knowledge, experience and information among professionals.

It has become a useful tool to stay up to date on some aspects of care, and its audiovisual format assists in answering questions in a short period of time in a relaxed way.

Subject areas: 

  1. Training/education for health.
  2. Scientific dissemination/innovation.
  3. Medical record.
  4. Clinical practice.
  5. Reflective practice.
  6. Programme.
  7. Clinical safety.
  8. Others.

Current status

  • In operation at SJD Barcelona Children's Hospital, with more than 150 videos of 5 minutes.
  • Initiative awarded as one of the five most innovative projects by Sanofi Connecting Nurses (2013). 
  • International award granted by Drexel University in Philadelphia in recognition of its work to improve the training of nursing professionals (2013).

Source

Internal innovation (Marta Fernández, innovation nurse).

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