We take part in various paediatric studies and trials promoted by the industry or the Spanish Society of Paediatric Nephrology, as well as those of other adult services, particularly Hospital Clínic de Barcelona, with which we have a close relationship in research on kidney transplantation.
Collaborative and multicentre studies
Spanish register of patients with chronic kidney failure before receiving replacement therapy.
National register of patients on replacement therapy, dialysis and transplantation.
Register of patients with chronic kidney failure in Catalonia.
These three patient registers, which contain anonymous data, help to assess the status of patients with kidney disease in Spain, methods of dialysis and transplant outcomes: organ donation, events that occurred, duration of graft, rejection, etc. With these results, the National Transplant Organisation can draft the annual public report.
Genetics and kidney disease
Cystinosis: Spanish Society of Nephrology (SEN), AIRG-E, ORPHAN.
Lowe syndrome: CIBERER.
Transition to adult hospital, clinical trials, multicentre studies, etc.
We participate in major national conferences: Spanish Association of Paediatric Nephrology, Catalan Society of Neurology, Catalan Society of Paediatrics, Spanish Society of Nephrology, etc.